Wednesday, September 06, 2006
Still waiting and praying
They turned down the ECMO yesterday to see how Payton would do, and she did worse than last week. They were hoping that maybe she'd make some progress and her heart would be a little stronger, but that wasn't the case. At this point, it's unlikely that she'll ever get off the ECMO. We're in a critical week. On Monday she'll have been on ECMO for 4 weeks which is the point where your body starts to "tire" from being on the system. We aren't made to function this way, and though they do the best they can, the body doesn't like being on this artificial system. Today she looks okay. Her organs are still holding out (liver, brain, lungs), but it's a matter of how long she can hold out this way and be a viable transplant candidate - and that waiting time is getting shorter. A very good thing is that she hasn't had any infections to this point - something to be grateful for and to continue to pray for. So that's where we're at right now. It's been a challenging few days knowing we're entering into this crucial time and approaching a point where tough decisions could be coming. The Lord has been gracious and continues to give strength and peace. As we continue to say, thanks so much for praying. It helps me take moments of rest knowing others are praying when I'm not :). We're so blessed to have such an amazing support system around us. Much love, the Joneses
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10 comments:
We are praying often for Payton and for you both. Our God holds us in the palm of His hand and He understands us and our concerns over our children.
Just know that you are being cared about, and thanks for keeping us informed.
Pastor Ken Bergstedt - HOPE EFC, Roscoe, IL
Heather, my heart just aches for you and all that you guys have gone through. Your strength and character have been visible every step of the way. I love you guys and will keep praying every second for you, Payton,and Aaron.
Teara
Heather & Aaron, We pray steadily for Payton, and know that God has everything well in hand. He is in control, and will provide what is needed, both for Payton, and for you both as well. We pray for Payton's strength and that she stays infection-free. We pray for you, that you do not become discouraged, and that you continue to lean on the Great Physician. We love you all!
Karen & Brian Johnston
hello sweet friends... my heart goes out to you all in the midst of such challenging circumstances. your character strength and perseverance through this trial has radiated your love for Jesus and I'm praying that He continues to provide you with all you need in the days ahead... especially little Payton. I am praying for you.
love, Shanda
Dearest Aaron and Heather,
Our hearts are with you in this!
We think and pray for you often, having experienced for ourselves God's love and provision even in the most difficult of times. He will never leave or forsake you-call out loud to Him. Only He knows your whole hearts and souls and only He can minister to them perfectly. Julie Newhouse.
Beloved Aaron, Heather and Payton -
Waiting is so difficult and I pray that God continues to bless you all. I sense that all three of you are a blessing to those around you in the hospital, letting Christ's light shine through. I know Payton must really be enjoying hearing all about "Little House on the Prairie" and listening to the soothing voice of her beloved mother. What a wonderful way to be with your child!
Hang in there - remember that
Yesterday was history-
Tomorrow is a mystery-
but Today is a gift -
That is why they call it
The PRESENT!
This reminds me to cherish each moment and focus on this day alone since tomorrow brings enough trouble of its' own.
You three are steadfastly in our family prayers.
In His Love - through which ALL things are possible -
Norah, Airth, Heather and Rachel
I love the way you love the Lord, even in this hard time. You are definitely in my prayers and ours here at Mankato.
Psalm 119:49-50
Remember your word to your servant, for you have given me hope. My comfort in my suffering is this: Your promise preserves my life.
Love and prayers!
We are all praying for your family and Payton. God is able!! Rest in knowing that!
Lisa Mai
It is amazing to see how God is being glorified through Payton's life and what a strong witness your entire family is. You are in our thoughts and prayers.
Amanda and Matt Travis
Well you guys are an incredible team! I am so blessed by every entry I read to see your faith so strong. We continue to pray for you each day that God will give you strength, and to guide the decisions that come your way. Out of the mouth of a child "Jesus I pray for baby Payton's little heart, that she would feel better." Kylie has not stopped praying and neither have we. Remember you have an army of people praying, and prayer is so powerful! We love you!
Jessica Westberg
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