5 weeks

Today we're 5 weeks out from surgery and on ECMO and 4 weeks on the transplant list. It was a pretty mellow weekend. Daddy and Uncle Cory watched football with Payton while mom took a 2 hour nap. It was a good Sunday for all :). Aaron left at 8 this morning to go back and work a few days, and I, of course, have assumed my post with book in hand.
Today is a busy day. She's getting a head ultrasound right now and in a few hours will get an Echo (ultrasound) on her heart while they do a trial turn down on the ECMO to see where her heart is at. I'm not at all sure what the next few days will bring, but we'd appreciate your continued prayers. At some point decisions will have to be made, and we're not sure when that point will come. As far as I know she's still viable for a transplant - I haven't heard differently. So we just continue to pray that she remains stable and infection free. Also, for a transplant to be possible they'll need to find a vein for IV access, which I've mentioned before, and as time goes on, another concern is that there's not too much scar tissue built up so that they are able to put a new heart in. We'd appreciate your prayers for this as well. Thanks so much for continuing to pray - we are so grateful as this waiting gets long, especially when you don't know what you're waiting for. The Lord continues to abundantly provide in so many ways, and we're grateful for that as well. Much love, the Joneses