Prayer for Wisdom

Payton did really well during the trial turn down on ECMO, better than she did the last time. This baby has more surprises up her sleeve... Well, Her surgeon was just in and here's what we know for now. He's trying to figure out what to do next. Tomorrow, he will look at the echo (ultrasound) that they took of her heart while they were doing the turn down. He's unsure of whether they can/should try to take her off the ECMO. 1. They're not sure how well she'd do off it for how long. 2. She's been on the machine for 5 weeks which means it'll be harder to get those canulas (tubes carrying the blood into/out of her heart) out because of scarring which can lead to trying to control bleeding if they're removed. 3. She's been stable on the ECMO but how long can she remain that way (at 6 weeks you're getting to the point where it's been a long time to be on life support). 4. If she comes off ECMO it would be very beneficial to make that hole (VSD) in between her ventricles bigger so the blood can flow back and forth easily, but this is a very delicate procedure because you don't want to cut valves or anything else around there...and is it possible to make it bigger - he's not sure. Basically, they're goods and bads on either side and which way will give us more time to wait for a heart. So that's why I ask for prayer for wisdom, that the doctors would see clearly what the next steps should be. I continue to be amazed at how the Lord has sustained Payton. She's doing well for a baby who's been on life support for this long. She's still having more "Father Abraham" moments where she's moving and looking around. But each day and each next step is so fragile and so tedious and feels to rest on such a fine line. It continues to remind me of how much Aaron and I need the Lord each day and how important it is for us to continue to remember his sovereignty, power, love, and faithfulness in the midst of this. Thank you for covering us in prayer. I feel so blessed that we have such a support network. I often look at other families in here and know they can't have the love and support that we have. Back when we met with the genetics doctor, hours before we would be admitting her into the hospital which we obviously didn't know, Aaron told her that maybe we had Payton because the Lord knew that no matter what happened she would be wanted and cared for and loved. I have thought of that often since then. Thanks for loving and praying for our daughter with us.