Payton went to the OR later yesterday afternoon. The surgeon that would do the transplant took her down to sortof clean things up and simplify and close her chest more so she's able to remain on life support a little easier. He said at this point transplant is still a longshot, and they've got to get her lungs looking a little better to really make a transplant a viable option. Her heart is enlarged and that's not helping the left side of her lungs out at all. So they're doing a little more with the ventilator to try to work on it. He said her lungs aren't bad, but they aren't good - and for her to take a transplant her lungs absolutely have to be ready for it.
We're in a place now where we're "transferring" from the surgeon who did her first 2 surgeries to this new surgeon who would do the transplant. He's been very honest, and we appreciate that. He was in this morning and continues to keep an eye on things, and I'd say, overall, we like him. So that's where we're at at the moment. We'll continue to keep you updated. Much love, the Joneses
23 comments:
We are praying constantly asking for God's supernatural help. He is the great physician and healer. You're in our thoughts so much through out each day and even into the night. Lisa Martinson
aaron, heather and payton,
i've been checking in every couple of weeks to see how things are and was sad to read the recent updates. i can't imagine the emotional pain you are experiencing, but yet i know you experiencing God in ways that are unique to these situations. you are amazing parents and payton was given to you for such obvious reasons. andy and i will be thinking of praying for the whole jones family...i am sure it is difficult for extended family too. so hard to see a little baby endure so much, but sounds like she is a little trooper. thank you for sharing your life in N. Myrtle...i remember walking to the pelicans game and you sharing about trying to have a baby when you get home. so great how God fulfilled that desire in payton. what a blessing she is.
love, Sara Traub (Thompson)
aaron, heather and payton,
i've been checking in every couple of weeks to see how things are and was sad to read the recent updates. i can't imagine the emotional pain you are experiencing, but yet i know you experiencing God in ways that are unique to these situations. you are amazing parents and payton was given to you for such obvious reasons. andy and i will be thinking of praying for the whole jones family...i am sure it is difficult for extended family too. so hard to see a little baby endure so much, but sounds like she is a little trooper. thank you for sharing your life in N. Myrtle...i remember walking to the pelicans game and you sharing about trying to have a baby when you get home. so great how God fulfilled that desire in payton. what a blessing she is.
love, Sara Traub (Thompson)
I've been praying for you all and the doctors and really everyone involved......You are continually on my thoughts and prayers!!!!
Tammy Ecklund
We'll continue to pray for improvement, especially those lungs. We know she's a fighter!
I continue to lift Payton up to the Lord, knowing He alone can accomplish mighty things. I am also praying for your entire family. Payton has proved to be such a trooper and God is with her every moment. I have continued to ask for strength for each of you, that you will feel a very real presence of our Lord and Savior, and that He will surround each of you with consuming love. I am trusting God for a miracle for Payton. Many times when doctors have done all they can, God is just getting started. Love to you. - Joyce Alison
Praying for all of you.
~Stephanie H
Thanks for the update - we will be praying that Payton's lungs get stronger, so that she is ready for a transplant. Know that we are thinking of you and praying for you constantly.
Love,
Brian & Karen Johnston
My prayer for peace and comfort are continuous today. I hope you feel the loving arms of our Father wrapped around you. I was reminded of a song....
A quiet place far away in the center of my heart
Sheltered by the solitude like my daddys arms
Seeking and knowing I will find
Resting these weary eyes
Leaving my deepest fears behind
Under the endless sky, I lift my heart up high and
Chorus:
Father You breathe and I hear You whispering
And Your mercy covers me
Father You breathe and Your presence fills the air
And I find my solice there
Here is where peace abides with all that I desire
You lay me down in luscious green to rest when I am tired
Savior You meet me where I am
Here on earthen floor
Dying You gave me life again emptied of all but love
and that wouldve been enough but
May you find solitude and rest in him. Wish I could do more. Lovingly, ~AK Jennings
You continue to be in my prayers. God can do miracles and this is what I am praying for.
Aaron and Heather and Payton,
Again our prayers are with you and our thoughts on a daily, hourly basis. God is God is God is God. Sometimes that's the only thing we have to hold on to. We love you .
Keith and Sue
Your in my thoughts and prayers are you go through this difficult time. Adriana Grisales
We are praying for all three of you. The Sky Lodge staff
Aaron, Heather and Payton
Josh and I are praying for you daily. We were out of town and got back Monday and heard the latest. Keep us posted and let us know if there is anything we can do to help. Stay strong and the Lord will do great things.
Love, Josh, Tammi & Olivia Pond
My wife and I had to submit our 4 year old to major surgery - after one doctor said it was borderline and the other said it was necessary. He's fine today, but it sure is hard to make decisions on our little ones. We are praying as a staff here at HOPE for you and appreciate the beautiful picture I got to see of her in the stroller. God bless and keep you all. Associate Pastor - Hope EFC - Ken Bergstedt
Praying for you:
My HOPE is built on nothing less
Thank Jesus' blood and righteousness
I dare not trust the sweetest frame
But wholly lean on Jesus name
On Christ the Solid Rock I stand
All other ground is sinking sand
All other ground is sinking sand
When darkness veils His loving face
I rest on His unchanging grace
In every high and stormy gale
My anchor holds within the veil
On Christ the Solid Rock I stand
All other ground is sinking sand
All other ground is sinking sand
My heart broke as I read your entries, however I know that God is bigger, after all he created Payton. My family is praying for her and for you guys.
Lisa Williams-Mai
My heart really goes out to you two, especially Heather as it is so hard for a mother to see her child not do well. I just prayed for you two and Payton. I'm so glad you two lean on the Lord for your strength and peace. He is exalted by your humility, love, and trust in Him. I hope to see Payton sometime this year! Warmly, Matt Sell
Again, just 3 little words,
WE LOVE YOU !!!!!!!!!!!!!!
Dear Aaron, Heather, and Payton,
Just wanted to let you know that I've been thinking and praying for you continually. I try and check your website everyday, and pray for you daily. I really can't even imagine what you all are going through. It really is so heartbreaking, and I wish you didn't have to go through all that you have. My heart goes out to you all. Erik and I will continue to pray for you continually. I also wanted to offer some encouragement to you if possible. Whenever I go through difficult times I think about this verse, and know that there are reasons for my suffereing. 1 Peter 1:6-7. In this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. These have come so that your faith—of greater worth than gold, which perishes even though refined by fire—may be proved genuine and may result in praise, glory and honor when Jesus Christ is revealed.
We love you all and will continue to pray for your precious Payton. In Him, Kate and Erik Howg
We love you so much, and are praying for you every day! Thank you for your sweet email...even in times of trouble, you still uplift others! Lots of love coming from Colorado...
Lyndsey
Heather & Aaron,
Just a note to let you know we still lift you all up in prayer continually. Also, Brian and I will be coming through Rochester on Friday, late morning, on our way to my brother's wedding, and would love to stop and see you for a bit, if possible. We will give you a call, probably Friday morning when we leave, to make sure this is okay.
We love you!
Karen (& Brian) Johnston
Aaron, Heather, and Payton,
Hey you guys. I miss our great times at NMB. I've been praying for you guys since I heard about Payton months ago but haven't talked with you yet. I'll keep lifting you all up. May the Lord refresh you and hold you close as He moves in Payton's life. Take care,
Adam Koehler
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