Psalm 33

"By the word of the Lord the heavens were made,
and by the breath of his mouth all their host.
He gathers the waters of the sea as a heap;
He puts the deeps in storehouses.
Let all the earth fear the Lord;
Let all the inhabitantsof the world stand in awe of Him!
For he spoke, and it came to be;
He commanded, and it stood firm.
The Lord brings the counsel of the nations to nothing;
He frustrates the plans of the peoples...
The Lord looks down from heaven;
He sees all the children of man;
from where he sits enthroned he looks out
on all the inhabitants of the earth,
He who fashions the hearts of them all
and observes all their deeds...
Behold, the eye of the Lord is on those who fear him,
on those who hope in his steadfast love,
that he may deliver their soul from death
and keep them alive in famine.
Our soul waits for the Lord;
He is our help and our sheild.
For our heart is glad in him,
because we trust in his holy name.
Let your steadfast love, O Lord, be upon us,
even as we hope in you."
Psalm 33:6-10, 13-15, 18-22

I've been reading this Psalm all week - reminded that He is the Creator, that He fashioned Payton's heart, that He is greater than the plans of men, and that He is with us. It's been an incredibly long 2 days. Aaron and I gave all this to the Lord on Friday night and, of course, have continued to lift it all before Him in prayer since then. That said, here's what happened today.
When we arrived at the hospital this morning all the doctors were in her room - including the doctor that deals with transplants. I wasn't quite expecting it; so it threw me a little. We went into a private room to wait while they talked a little more. Then the transplant doctor and 2 others came to meet with us.
Currently her liver is good, her lungs are pretty good, her kidneys are functioning to an extent, they think there will be some veins for access, and neurologically she's good. So at this point she would be a candidate for a transplant. He prefaced all this by saying that the chances of her getting a heart and getting out the front doors of this hospital relatively okay is 10% or less. Anything else surgically really isn't an option - she has a pretty serious heart defect, and the chances of her recovering on her own are pretty much slim to none. Then he went on to explain a little of what's involved in walking down the road of getting a transplant. After he left, Aaron and I prayed for a bit and talked, and we both felt a very real peace from the Lord to pursue that option. So at this point she is listed or will be listed very soon as a needed recipient of a heart.
This doesn't mean that we get a heart and she's in the OR. IF we get a heart, they reevaluate her to see if she could still take it and then they accept the heart.
So at this point she's holding her own on life support, and we wait. How long we don't know. It'll be an issue of how long she can maintain on the life support - days, weeks, maybe months? - if she starts slipping it's a whole other set of decisions. So we take it day by day, hour by hour.
Today Aaron and I have felt a very real peace from the Lord and even joy. So we've been incredibly grateful for that.
They'll take her back down to the OR tomorrow to clean everything up and close her chest a little more to help prevent infection.
She opened her eyes when we came back in the room this morning and looked at us and looked around a little. It was fun to see her with her eyes open. She's such a beautiful little girl.
Thank you so much for your continued prayers. They have helped sustain us. We're starting down a long road and humbly ask that you continue to lift us up. We remain in the knowledge that He is in control and want to continue to submit to that.