Monday, May 01, 2006

A Note from Mom

Well, this is my first official post. Our dear friend, Londa, created this blog for us and has done a better job explaining what's happened than I could have. I'll maybe take an opportunity to fill in the details...

Tuesday evening, April 25, I went in to be induced. On Wednesday, the 26th, she was born at 6:41 pm. When she was born she had the cord wrapped around her neck pretty good which prevented her from getting that first good cry out. I was able to hold her for about a minute before they began assessing her and treating her. Because she didn't get that good cry she had "wet lung" and was put on oxygen right away. She was on oxygen all night on Wed., and then late Thursday morning they decided just to do an ecocardiogram (sp?) to make sure everything was okay. The results were sent to Mayo to be read here in the next few days. Well, the tech must've seen something because the results were read that afternoon, and as Aaron and I were eating supper, one of the doctors came and explained a little what was wrong with Payton's heart and that she would be airlifted to Mayo within the next few hours. Needless to say this was a bit of a shock for us. There was a narrow spot in her aorta, but while a baby is in the womb, blood is pumped through a duct which closes when the baby is born and has those good cries when coming out of the womb. Having the cord wrapped around her neck is what saved her life because it prevented the duct from closing.

Payton's helicopter lifted off around 9 pm, and I was discharged early from the hospital at 10. We drove to Rochester that night and got here around 2am. Aaron and my dad went directly to the hospital where they found out they'd be operating the next morning. We got to the hospital at about 8 on Friday morning and at 9 were sending her off to the OR to a very critical surgery. There are no words for the fear and terror of sending your less than 48 hour old baby into major surgery. Along with fixing the aorta, they closed 2 holes in her heart and closed that duct that was still open. We ended up having one of the best surgeons in the country which was a blessing, and overall the surgery went well. Londa posted the arrithmea (sp?) that happened Fri. night and terrified us again for the day - so far the worst day of my life.

Sat. morning they took her back to surgery to close her up (not uncommon to leave babies open after open heart surgery because the pressure from extra fluids, ect. is too much). Sat. night was another scary night because her blood pressure was low and so they opened her again. Her current status is that they will close her tomorrow morning first thing. Probably around 8-9. Please pray for Payton tomorrow. This is another long day of waiting and making sure she does okay after they close her up. Three things to pray for specifically - no infection, no complications, and good response being closed.

Aaron and I are overwhelmed at how many people are praying for us and for Payton. It's humbling to see how many people care and are supporting you (even people we've never met). We're beyond grateful and know that your prayers are what's keeping her going. Please keep praying - we need them desperately. We'll try to keep you posted in the upcoming days and get some pictures up :). We think she's just beautiful :).

31 comments:

Anonymous said...

Dear Jones' family, Just wanted you to know that we are praying for you. My name is Denise Detweiler and I live in The Netherlands with my family. We heard of your situation through PLS. My heart goes out to you during this time. In July 2004, after a very difficult pregnancy, I gave birth to our second daughter, Annelies. She too was born with the cord around her neck but she was blue and wasn't breathing. She was only 4 and a half lbs. To make a long story short, we now have a happy and healthy almost two year old. We'll keep praying for you.

Anonymous said...

Heather, Aaron, and sweet Payton...

We are praying for you friends. With our own little one on the way, I can only imagine the fears and anxiety you must be experiencing right now. We are crying out to the Lord with you...that He would hold Payton (and you!) close to His heart--protecting her little body from infection and complication. He is so big...what strong arms to hold her. Sending love and hugs,
Dave, Vicki, & baby

Anonymous said...

Aaron and Heather, our family is praying for you and precious Payton. We love you guys.
Pete, Di and Family

Anonymous said...

We just want you to know that we are keeping you and sweet little Payton in our prayers. We pray for strength and healing for not only her, but for the two of you as well. We aren't too far away, so please let us know if you need anything or just want someone to sit with. We look forward to seeing a picture of her sweet little face.
Love,
Tony and Clare Friedrichsen & family

Anonymous said...

Dearn Aaron, Heather and Payton,

We love you and are praying for you so much here at UWEC! I wish I could be right there holding your hand! Just know that we are thinking of you a lot and praying for you too. We're excited to meet your daughter! God Bless,

Samantha Gund

pjohnmur said...

Heather and Aaron and Payton

You have been in my prayers this past week and I just want you to know that my heart goes out to you and little Payton.

Pat

Anonymous said...

Heather, Aaron, and Payton,

Please know that we have been praying continually for you all. We know God is with you holding your hands and He will help you triumph through it all. We love you and miss you.

Susan and Tammy

Anonymous said...

Dear Heather and Aaron,

We have been praying for all of you, especially for Payton. I cannot imagine the emotional rollercoaster you have been on - may God's strength continue to be your strength. If Rochester were a bit closer, I would be there lickidy-split! :) My heart goes out to you - I've shed a few tears (my empathy coming out!!). You are loved and cared for by the Duey's. I thought it would also be cool to know that a couple girls here at UWO that know you guys from project last summer are praying for you as well.

We'll keep checking for updates.
Love~ Jen and Josh

Anonymous said...

I just wanted you to know how much I've been praying. My mom and dad send all their love as well. I can't wait to see you and the beautiful baby that you brought into this world. I have no doubts that everything will work out just fine.

I hope to see you and Aaron soon.

Love,
Vickie

P.S. (Robert's ambilical cord was wrapped around his neck too...and there was nothing to fear.)

Anonymous said...

Aaron, Heather, & Payton, we want you to know that we will continue to pray for you guys. We are so happy that she is doing better. Ryan said she was cute...Riley and myself can't wait to meet her!! :) Riley stayed up late so she could hear from daddy all about Payton!
God Bless.

Anonymous said...

Sweet Aaron and Heather!
I love you both more than you know and I am praying with everything in me right now for you both as well as baby Payton (beautiful name by the way)! That Holy Spirit is soo good as He holds authority over our physical bodies just the same as our Spiritual bodies! I love you! Stay strong...Jesus is only good!

<><
Abby

Anonymous said...

Heather and Aaron-

We are praying that God would sustain you and heal your precious Payton.

Paul and Melissa Scholten

Anonymous said...

Heather, Aaron and little Payton ~

Oh sweet family, how you are in my thoughts and prayers! I wish I could be there to help you out but I hope you can feel the prayers of many going on on behalf of you and your family. Moment by moment... I'm sure the hours pass by slowly as you wait but I pray you are aware of the Lord's love and hand on your lives, especially Payton's, during this time. I love you all and send big hugs your way. If there is anything you need that I can do please call.

Love, Shanda

Sara said...

Aaron and Heather -

We are thinking of you and praying for you guys all the time. We cannot wait to meet baby Payton (can I still call her BJ?), and Gabe can't wait to meet his new friend. We love you guys and will see you soon. Please do not hesitate to call if there's anything at all we can do.

Dan, Sara and Gabe

Anonymous said...

Aaron and Heath,

Hey you guys. We want you to know that we love you so much and that little Payton is a blessing from the Lord. We've been praying for you in church and spent time in prayer for you in Sunday School this last week as well. We will continue to pray while little "P" recovers from this small setback. We are trusting the Lord to touch her body and to heal her completely. I know Deb really wishes she could be out there with you Heather. Can't wait to see your family when you get back.

The Selvig's

Anonymous said...

Jonesy!
The Hammers in Portage are pulling for ALL of you! The little Hammers have you on their nightly prayer list each night. Hang in there! She's as strong as you are!

Fritz Hammer

Anonymous said...

Aaron & Heather,
You have been in our daily prayers asking God to watch over you and Payton. What better place to be than in God's hands when we are in need. At the Russell wedding Sunday, Jim lead us all in a prayer for the 3 of you. Many are praying and God is at work, trust in His wisdom and lean on His strength!

God bless you,
Mark & Lou Rieland

Anonymous said...

Aaron and Heather,

Just want to let you know that our church has been praying for you and Payton. We are glad for the regular updates and this site. We will continue to pray for healing and for God's peace and presence to be very real for you and your families.

Howard Edwards

Anonymous said...

Heather, Aaron, and Payton,

Our prayers are with you all during this difficult time. Please know that we are thinking of you, and that we love you all, and we are looking forward with faith and anticipation to seeing you all in church soon.

Karen & Brian Johnston

Anonymous said...

Aaron, Heather and Baby Payton,
You have all been in my thoughts and prayers over the last few trying and difficult days. I can't imagine how scary this has been for you and am so thankful for your faith in Jesus. The Lord sustains doesn't He? I am so glad to hear little Payton has had a couple of good days! Can't wait to meet her!
With love,
Kristin Roesch

Anonymous said...

Dear Jones family
Our prayers are with Payton and all of you. You are all on our minds and in our hearts continually.

Anonymous said...

Aaron & Heather, everytime we go to prayer for whatever reason (even over cold pizza) we talk to God about you and Payton. We love you all so much! I've mentioned your situation on the air and asked our listeners to pray too. Keep trusting Him. He is faithful and true!

Dudley & Inge

Anonymous said...

Dear Heather, Aaron & Sweet Payton~

Just wanted you to know that we are praying with you. You are on my mind a lot. God will give you strength for every new day. I've learned through the years that what Satan intended for bad God always turns it around for His glory, so trust in Him with all of your heart that His glory will shine in this trial some time for you. I love you dearly. Donna Schoessow

Anonymous said...

Heather & Aaron:
We love you and miss you! You and Payton have been and will continue to be in our prayers. It may sound cliche' and I apologize, but keep trusting the Lord with this gut-wrenching ordeal. He will see you through it, no matter what happens. It is when we are faced with such trials that we can truly cling to God's power and grace.
We look forward to seeing your friendly faces again in Eau Claire soon! He has already done so much! :)
Love,
Karey Leonard

Anonymous said...

Heather & Aaron,
We love and miss you! You and Payton have been and will continue to be in our prayers. I apologize if this sounds cliche', but keep trusting the Lord with her! It is when we are put in hard circumstances such as these that we can truly see God's power and grace. We look forward to seeing your friendly faces back in Eau Claire soon!
Love,
Karey Leonard

Anonymous said...

Aaron & Heather
Your daughter is beautiful!!! She has a great set of hair....not at all like her Grandpa J!!! :) I wanted to let you know that Lee & I have been praying hard for you. You have been on my heart so heavily. We love you three so much and we are praying for a miracle. GOD CAN DO ANYTHING!!! We can't wait to meet your sweet ANGEL Payton!
May God Bless you REAL GOOD!!!
Love,
The Blounts

Anonymous said...

Heather, Aaron and dear little Payton,
So Heather, although I met you just shortly before beautiful Payton entered this world, know that I think about the three of you many times throughout the day and I pray that our amazing Lord will hold Payton in his arms during her recovery and forever. God Bless,
Haley

Anonymous said...

Heather & Aaron -

You are in our thoughts and prayers. We will continue to pray for little Payton until you can safely bring her home. Please let us know if we can do anything. We love you!!

Adam & Jamie

Anonymous said...

Dear Jones' We're so happy for you that Payton is in such a wonderful place medically. Our SS class has prayed for Payton, and I remember her in my prayers throughout the day. I wait to hear that she is wonderfully healthy - very soon!!! Love, Kris and Ron Huber

Anonymous said...

Hey Aaron, heather and Payton,
I just want to let you guys know we are praying for you here at EC and we love and miss you guys. We cant wait to have our first SI baby here at EC :) God bless
jake mlsna

Anonymous said...

Aaron and Heather and my new buddy Payton,
Hey there kids, I have been thinking and praying for you guys and cannot wait to see you all back in the EC. Can't wait to be chilling with Jones' again.

-Nich